Lizabeth94
September 7th, 2018, 06:49 PM
So, as some of you know I struggle with chronic migraines, which is the reason I have kept my hair short for past several years...
If anyone is wondering, the phenomena where it feels like your hair "aches" is called cutaneous allodynia, heres a link to an awesome article on the subject and how it relates to migraines: https://americanmigrainefoundation.org/understanding-migraine/allodynia-when-touch-hurts-but-shouldnt/
It also affects other areas of my body, for example I can't wear tight or scratchy clothing especially during a migraine because its completely overwhelming and painful.
Basically once I reach shoulder length, i start struggling with more and more scalp pain. It usually feels as though my entire scalp is bruised. On good days I can wear my hair down (dry) with no problems, but it hurts when its wet due to how heavy it gets (my hair is very porous and soaks up the water like a sponge). I can maybe do a loose ponytail or braids for a short period of time, but then I have to take them out.... And on bad days even wearing it down or trying comb or part it hurts. Wet hair and updos become unbearable!
I reached shoulder length around the beginning of summer, and right on cue my scalp pain started getting worse. Rather than cutting it, I decided to keep growing and just hope it goes away. The pain escalated over the summer, and my overall migraine pain got worse too. At the end of august I was about 1 inch away from collarbone and couldn't take it anymore, so I tried using some thinning scissors to take the weight out of my thick hair. It didn't really help much, so out of desperation I gave myself an undercut selectively on the parts of my head where I get the worst pain during my migraines (the right side up to my temples, and the back of my head/nape.) And then I evened up my hemline bringing me back to shoulder length. :knitfrog:
I haven't taken pictures yet, but I will try to take some maybe tomorrow. In the meantime, this is EXACTLY what I have right now, its even pretty close to my natural hair color.
https://hairstylehub.com/short-haircuts-for-thick-hair/25/
The undercut seems to be helping, my hair no longer hurts me when its dry, only when its extra heavy from being wet. I haven't bothered attempting to put it in a ponytail or braid yet, its not really necessary at shoulder length, plus it would show my under cut since my hair isn't long enough to make a low pony. (I think people with undercuts look ridiculous when they have their hair in a high pony or bun showing the undercut, but thats just my personal opinion!)
The problem is.... I'm still struggling with pain when my hair is wet... and since I'm a swim instructor and a lifeguard, my hair is wet CONSTANTLY. Its not like I can just throw on a swim cap either to keep it dry, they are generally frowned upon during lessons, and plus the tight squeezing hurts just as badly as the weight of wet hair.
Also, i'm worried that as I continue to grow, the pain will return and it will begin to bother me even when dry, or that when it gets beyond shoulder and I'm forced to tie it back during lessons, it will hurt too much to do so.
The recommended medication for treating allodynia seems to be triptans, but I've tried them before and I don't tolerate them, I get pretty nasty side effects. I do get botox shots from my neurologist every 3 months, but it doesn't numb up my scalp enough to make a difference. I'm planning to ask my doctor if there is anything else I can try when I see him next specifically for allodynia pain, short of taking prescription pain killers. I'm hoping maybe there is some sort of medicated shampoo or something that I can use to numb the scalp. :confused:
A friend of mine (who also has migraines with allodynia) suggested using a roll on lidocaine directly on my scalp. (Warning, it can cause hair loss if used over a long period of time!) I tried that and I didn't notice a difference. :(
The only way I've found to relieve the pain, is using a hair scarf as a makeshift hair "snood." I just very gently fold my hair against the back of my head, tie on a scarf loosely (rosie the riveter style), and voila! Instant pain relief! https://i.pinimg.com/originals/85/ff/54/85ff543deee070f6fb1b03e5dd50a67b.jpg
(https://i.pinimg.com/originals/85/ff/54/85ff543deee070f6fb1b03e5dd50a67b.jpg)
It works because the scarf supports the weight of my hair instead of my scalp, and my hair isn't being pulled anywhere, its just loosely floating around inside the scarf. (If you've never tried this I highly recommend it, even you don't experience scalp pain, its just super comfortable in general!) It also works with a lightweight slouchy beanie hat as long as it isn't too heavy or too tight. I just put it on, then pick up my hair and drop it into the "pouch" in the back. Of course this isn't an option when I need it the most, because bandanas and hats are not allowed when I'm at work! :rant:
I'm not planning on cutting it any further yet... as fate would have it... I'm having surgery on my left hip next week, and I will be on desk duty likely till the end of the year. Since I won't be swimming/teaching swim lessons for a while, I won't have to get my hair wet or wash it more than once a week, and this means i can avoid the worst of my scalp pain for a while. If i can't find a way to manage it though by the end of the year, I may have to keep my hair short (less than shoulder) to avoid the constant pain when it soaks up water when I'm teaching lessons all day.
On one hand, as much as I love the idea of having long hair again, I'm not willing to sacrifice my awesome job or my love of swimming to keep it. On the other, not reaching my goals will make me upset, I don't like the way i look with short hair (especially now that I've gained weight that really shows in my face), I don't want to disappoint my hubby who has been looking forward to my hair getting longer, and I don't want to shell out $$$ to get my hair cut every month, sometimes I just don't have it. :cry::wail:
I can't be the only one who has this problem, what do you do to stop the pain?
If anyone is wondering, the phenomena where it feels like your hair "aches" is called cutaneous allodynia, heres a link to an awesome article on the subject and how it relates to migraines: https://americanmigrainefoundation.org/understanding-migraine/allodynia-when-touch-hurts-but-shouldnt/
It also affects other areas of my body, for example I can't wear tight or scratchy clothing especially during a migraine because its completely overwhelming and painful.
Basically once I reach shoulder length, i start struggling with more and more scalp pain. It usually feels as though my entire scalp is bruised. On good days I can wear my hair down (dry) with no problems, but it hurts when its wet due to how heavy it gets (my hair is very porous and soaks up the water like a sponge). I can maybe do a loose ponytail or braids for a short period of time, but then I have to take them out.... And on bad days even wearing it down or trying comb or part it hurts. Wet hair and updos become unbearable!
I reached shoulder length around the beginning of summer, and right on cue my scalp pain started getting worse. Rather than cutting it, I decided to keep growing and just hope it goes away. The pain escalated over the summer, and my overall migraine pain got worse too. At the end of august I was about 1 inch away from collarbone and couldn't take it anymore, so I tried using some thinning scissors to take the weight out of my thick hair. It didn't really help much, so out of desperation I gave myself an undercut selectively on the parts of my head where I get the worst pain during my migraines (the right side up to my temples, and the back of my head/nape.) And then I evened up my hemline bringing me back to shoulder length. :knitfrog:
I haven't taken pictures yet, but I will try to take some maybe tomorrow. In the meantime, this is EXACTLY what I have right now, its even pretty close to my natural hair color.
https://hairstylehub.com/short-haircuts-for-thick-hair/25/
The undercut seems to be helping, my hair no longer hurts me when its dry, only when its extra heavy from being wet. I haven't bothered attempting to put it in a ponytail or braid yet, its not really necessary at shoulder length, plus it would show my under cut since my hair isn't long enough to make a low pony. (I think people with undercuts look ridiculous when they have their hair in a high pony or bun showing the undercut, but thats just my personal opinion!)
The problem is.... I'm still struggling with pain when my hair is wet... and since I'm a swim instructor and a lifeguard, my hair is wet CONSTANTLY. Its not like I can just throw on a swim cap either to keep it dry, they are generally frowned upon during lessons, and plus the tight squeezing hurts just as badly as the weight of wet hair.
Also, i'm worried that as I continue to grow, the pain will return and it will begin to bother me even when dry, or that when it gets beyond shoulder and I'm forced to tie it back during lessons, it will hurt too much to do so.
The recommended medication for treating allodynia seems to be triptans, but I've tried them before and I don't tolerate them, I get pretty nasty side effects. I do get botox shots from my neurologist every 3 months, but it doesn't numb up my scalp enough to make a difference. I'm planning to ask my doctor if there is anything else I can try when I see him next specifically for allodynia pain, short of taking prescription pain killers. I'm hoping maybe there is some sort of medicated shampoo or something that I can use to numb the scalp. :confused:
A friend of mine (who also has migraines with allodynia) suggested using a roll on lidocaine directly on my scalp. (Warning, it can cause hair loss if used over a long period of time!) I tried that and I didn't notice a difference. :(
The only way I've found to relieve the pain, is using a hair scarf as a makeshift hair "snood." I just very gently fold my hair against the back of my head, tie on a scarf loosely (rosie the riveter style), and voila! Instant pain relief! https://i.pinimg.com/originals/85/ff/54/85ff543deee070f6fb1b03e5dd50a67b.jpg
(https://i.pinimg.com/originals/85/ff/54/85ff543deee070f6fb1b03e5dd50a67b.jpg)
It works because the scarf supports the weight of my hair instead of my scalp, and my hair isn't being pulled anywhere, its just loosely floating around inside the scarf. (If you've never tried this I highly recommend it, even you don't experience scalp pain, its just super comfortable in general!) It also works with a lightweight slouchy beanie hat as long as it isn't too heavy or too tight. I just put it on, then pick up my hair and drop it into the "pouch" in the back. Of course this isn't an option when I need it the most, because bandanas and hats are not allowed when I'm at work! :rant:
I'm not planning on cutting it any further yet... as fate would have it... I'm having surgery on my left hip next week, and I will be on desk duty likely till the end of the year. Since I won't be swimming/teaching swim lessons for a while, I won't have to get my hair wet or wash it more than once a week, and this means i can avoid the worst of my scalp pain for a while. If i can't find a way to manage it though by the end of the year, I may have to keep my hair short (less than shoulder) to avoid the constant pain when it soaks up water when I'm teaching lessons all day.
On one hand, as much as I love the idea of having long hair again, I'm not willing to sacrifice my awesome job or my love of swimming to keep it. On the other, not reaching my goals will make me upset, I don't like the way i look with short hair (especially now that I've gained weight that really shows in my face), I don't want to disappoint my hubby who has been looking forward to my hair getting longer, and I don't want to shell out $$$ to get my hair cut every month, sometimes I just don't have it. :cry::wail:
I can't be the only one who has this problem, what do you do to stop the pain?